LOGO OF WEBPAGE

Personal Stories

 
My life with EDS…. I know I post a lot on twitter and Facebook to try and raise awareness – but I’ve decided to write down my journey, good, bad, and ugly – so thank you so much if you have taken time to read this :). Ehlers–Danlos syndromes (EDS) are a group of genetic connective tissue disorders. Symptoms may include loose joints, joint pain, stretchy skin, and abnormal scar formation. It often takes many many years for a formal diagnosis. As I have hEds – I have decided to list some of...
 
Miscarriage isn’t taboo – and neither are syndromes! It’s okay not to be okay… I have thought long and hard about writing this blog, but then I remembered – writing is my release. Be that in the form of a poem, a blog, or random scribes on tatty pieces of paper. Writing is my therapy. It just goes hand in hand that it might help others too – and that’s what I want. Let’s start with the EDS… Ehlers Danlos Syndrome to give it’s technical term. There’s some decent information online about...
 
Someone asked me the other day if id ever saved someone’s life. I had to stop and think about that question, most people are asking whether you have had to do cpr (cardio pulmonary resuscitation) on someone and work in an active resuscitation, which I have on several occasions, but there are other times where if you don’t intervene , the casualty will die, of those I have done so many that I cant remember. I’ve saved so many that I cant remember now how many over 12 years of service. It is a...
Top