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Personal Stories

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You may have never heard of this ailment before - neither had I, until I was diagnosed with it. A brief description of what it is and the effects it has is as follows: Peripheral neuropathy develops when nerves in the body's extremities, such as the hands, feet and arms, are damaged. The symptoms depend on which nerves are affected. In the UK it's estimated almost 1 in 10 people aged 55 or over are affected by peripheral neuropathy. The peripheral nervous system is the network of...
My life with EDS…. I know I post a lot on twitter and Facebook to try and raise awareness – but I’ve decided to write down my journey, good, bad, and ugly – so thank you so much if you have taken time to read this :). Ehlers–Danlos syndromes (EDS) are a group of genetic connective tissue disorders. Symptoms may include loose joints, joint pain, stretchy skin, and abnormal scar formation. It often takes many many years for a formal diagnosis. As I have hEds – I have decided to list some of...
Miscarriage isn’t taboo – and neither are syndromes! It’s okay not to be okay… I have thought long and hard about writing this blog, but then I remembered – writing is my release. Be that in the form of a poem, a blog, or random scribes on tatty pieces of paper. Writing is my therapy. It just goes hand in hand that it might help others too – and that’s what I want. Let’s start with the EDS… Ehlers Danlos Syndrome to give it’s technical term. There’s some decent information online about...
Such a difficult thing. I want to share something I wrote on my personal blog called 'These things happen': One thing I found was that all the support went to Mum. I get it. She carried baby for three months. She nurtured that life. She went through the physical trauma of child loss. But Dads hurt too. You're expected to just 'get on with it' and support your partner as best you can - and I did. But when people said to me, "these things happen" as a way of excusing/explaining and moving...
My job puts me in the unique position where I deal with mental health - depression frequently - yet I have nothing in the way of mental health training. One day, a few years ago I was walking through the town with my girlfriend at the time when I man approached me. He said, "excuse me, I'm sorry to bother you. You probably don't remember me. I just wanted to say thank you. I hope you don't mind me interrupting your day. When you came to see me that day I was low. The lowest I have been...
I'm a man. I'm 42 years old. I'm supposed to be 'manly' and strong. I cannot suffer with my mental health. At least, that's what society tells me - whilst at the same time telling me its okay to cry. Its okay to be upset. Its ok to struggle with my mental health. Despite the overt support given to everyone in terms of dealing with their mental health, there is an underlying expectation to be strong. Anything else isn't 'masculine'. Just remember it's ok not to be ok. And if you need to...
Someone asked me the other day if id ever saved someone’s life. I had to stop and think about that question, most people are asking whether you have had to do cpr (cardio pulmonary resuscitation) on someone and work in an active resuscitation, which I have on several occasions, but there are other times where if you don’t intervene , the casualty will die, of those I have done so many that I cant remember. I’ve saved so many that I cant remember now how many over 12 years of service. It is a...

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